I was going to write a post telling you all about my hydroponic lettuce growing set-up, because why not? But instead it’s been such a bloody stressful week that I’m going to moan about that because I need to get it off my chest.
These are the things we’ve had to deal with this week:
- Decide whether to go ahead with Littlest’s elective surgery that is supposed to help with her curling-in feet. The hope is that she’ll be able to stand again. However, it’s been delayed for twelve months because #Covid and in all that time she has been without splints (more #Covid) and has not been standing. It is therefore likely that she doesn’t have enough strength left to regain where she was, even with lots of physio. But she might. Also, the anaesthetic is a bit dodgy, because of her breathing issues.
- Still pushing for a vaccine for her. The local health service is only calling clinically extremely vulnerable 12-15 year olds who are in residential care at the moment. Other services nearby are calling all children in special schools. It was a bit of a blow, but it will be a matter of weeks apparently.
- We needed to sign off her ‘Advanced Care Plan’, which used to be call her ‘End of Life Care Plan’, but they changed the name a couple of years ago to make it more fluffy and less brutal. It’s still brutal. We have decided we do not want resuscitation.
- My mother has updated her own DNR paperwork. She’s done, pretty much, and is perfectly happy with her low intervention decision; as am I because it’s what she wants, but it’s my mum.
- As the filling in the shit sandwich, one of our carer’s other clients has suspected Covid and she is therefore isolating until this person gets their test results back. It should have taken three days, but the test has been lost in the post. So we are managing without help.
- Mr AL has put his back out. (Lifting a bloody piano. Don’t laugh). I can move her, but it’s a bit much for me and tends to mean I have a seizure afterwards, so as he’s recovered we’re double-handling her…she has a hoist for actually getting in and out of bed/her chair/the sofa etc, but still needs moving once she’s landed.
- Talking Child has had another round of bullying at school. School sounds like half the student body have gone feral after three months of no real structure and a lot of staff are still off, shielding or whatever, and I wouldn’t be a teacher for all the money in the world at the moment. TC was disappointed that she missed a huge fight in the playground yesterday and when the head of year rang me, she sounded exhausted. If you are an educator, I applaud you, hang in there.
Anyway, all these things are why I’ve been quiet. I’m drained, I’m sad about my mum and the issues our kids are dealing with and I have been struggling to adult. I so want to get back on the writing horse in the mornings; and the last few days I have actually rolled out of bed and sat at my desk. But my brain hasn’t kicked in yet.
Eight Acts came out last weekend and As the Crows Fly is dropping on the 13th April. Inheritance of Shadows is in the process of going wide in audio with a new cover. My slate is clear, but I feel completely uninspired about getting on with Sylvia Marks, although I know where I want the story to go.
I was talking to Littlest’s community nurse yesterday and she says that pretty much all her families have crashed in a similar fashion. It’s the light at the end of the tunnel finally being visible, I think.
So for #TheWeekThatWas, that is all.