the pain and the glory

We’re at the Children’s Hospice this week – as some of you know, our child is life-limited, with an undiagnosed, but progressive, neuro-muscular disease. So we get to hang out here three or four times a year. Which is not nearly as grim at it sounds. As you can see, this morning we are exploring My Little Pony nomenclature in the conservatory. N gets round the clock care from people other than us, and we all get fed and rested and generally looked after. It’s great (she said, in a plucky, ‘making the best of it’ type of voice).

As you can see from the photo, both OH (stripey jumper, attempting to stand up ponies) and I both have our laptops open. We are going for NaNoWriMo. Yes, folks. We are doing it.

Which is, clearly, why I’m blogging and taking pictures of children and faffing around on social media.

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