Gallbladder Summer followed by Children’s Respiratory Illness Autumn

Nenna, smiling in her new pyjamas with pineapples on them.

If you follow me on social media at all, you’ll know that Littlest has been in hospital for a couple of weeks now. She went in with a respiratory infection that necessitated us flying back from our holiday/respite break and she’s having trouble throwing it off. She’s been in and out of the local ICU, swapping between there and the children’s ward HDU. There isn’t a dedicated PICU locally and we are waiting for a bed in the children’s hospital in Bristol. They are snowed however, because the Children’s Respiratory Illness Season ™ has come early this year.

She doesn’t currently need non-invasive ventilation and is on nasal oxygen of either the high-flow or low-flow kind; IV antibiotics; and having a lot of chest physio and suction. Her SATS keep swinging up and down and she is getting very tired. Last week we had a very difficult conversation with her doctors about the pros and cons of invasive ventilation. It needed to be had, but it was emotionally gruesome.

I’m updating every couple of days on tiktok, more for myself than anyone else really–it feels good to talk about it a bit, it releases some of the pressure inside me. She’s a strong-minded little girl–not so little now at fourteen–and we are hopeful she will throw this off. But also, we have been living with the knowledge that she is life-limited since we were first referred to the children’s hospice when she was four.

Every time she is poorly like this, her overall health and wellbeing steps down. Even if she throws it off, it’s probable she won’t ever regain the strength she had before. One of the reasons Bristol want her there is so they can assess her for overnight non-invasive ventilation when she is well enough to come home.

I am swinging between bursts of activity on social media and managing to write as displacement, to not being able to do anything. My own health still isn’t back to normal after my Gallbladder Summer and I’m having to pace myself. Consequently Mr AL is spending most of the time in hospital with Littlest–because of her communication issues and special needs she needs someone who knows here there pretty much all the time. I’m trying to do a few hours in the morning and early afternoon and he’s doing the late afternoon and evening; and when we don’t have help from one of her lovely carers, the night as well. No-one needs me overdoing it and having a seizure on the ward, although they’ve been very nice when I have.

Talking Child is bottling it all up, as are we all I suppose. Every so often they have a meltdown, completely understandably. We are taking it in turns.

That’s the news, anyway. If you’d like to contribute to a crowdfunder to help with additional carer costs and for hospital food when we don’t have enough spoons to take sandwiches and a thermos, I have set one up here. Alternatively if you’d like to support us by buying one of my books, you can find them here. Any help is very gratefully received <3.

#AMA: The Nix List

Ask me anything. Join my facebook group or newsletter for calls for questions!

This week’s question is another by Anabela (who gave me a wheelbarrow-load of really good ones!) Do you have subjects you think you could never write about?

Yes! Definitely! Is the short answer—I should think everyone does. And I should think everyone’s answer is very different and probably changes with time.

The first one that jumps to mind though is children. I’ve always been very disinclined to write about characters with children. Mine are in their early teens now and I was first published in 2017 when they were…thinks very hard…nine and ten. The absolutely last thing I wanted to do was revisit that in fiction. Likewise now, I can’t see myself writing in the parental romance genre any time soon. I had a rubbish time when they were tiny babies and it’s simply not something I want to explore, whether it would be a story that sells or not. I’m utterly baffled by epilogues in romance that show characters having children. I read them and they leave me cold, they’re not my thing at all. So I can’t ever envisage me writing one.

Having said that I do have a character in the Theatr Fach world who has a child; but that’s accidental—I wrote them as a side character in Out of Focus and threw in a kid they had to pick up from school as an excuse to leave Alex alone at the hospital; and I’d quite like to explore them further, so ta-da, they’re a parent. But generally speaking…writing about characters with children is a nix.

Also a nix is mpreg. Does that come under the ‘people with children’ caveat? It probably does, but it should also be a category on its own. I just…can’t. I think it might be my own dysphoria that makes me so revolted by it. Let me emphasise people should absolutely read and write what they want, this is my own personal reaction, not a judgment. I think, actually, giving it more thought whilst writing this, it’s not just mpreg, it’s an entire pregnancy thing. So let’s expand the nix to cover pregnancy. I cannot envisage ever writing a pregnant character. Even writing this paragraph has made me shudder. I did not enjoy being pregnant—I loathed it, every single minute of it. I had the two children very close together—sort of by design as I was nearly forty by the time the first one came along—but so close together that at one point I was pregnant and had post-natal depression. When Littlest was born, my lovely obstetrician wrote me a letter of congratulation expressing the wish never to see me in her clinic again. So a nix to pregnancy completely, please!

I don’t think there’s anything else I am conscious of definitely not wanting to write about. I’ve written about death and violence and assault, all sort of horrible things. I do find writing about sexytimes quite difficult sometimes. I don’t think that’s an inherent disinclination though, more that sex is inherently messy and funny and stupid and I find it hard to do right without slipping in to cliché. I’m always worried that readers will come across a sex-scene and it’ll throw them out of the story because I’ve done sexing in a way that no-one else will find acceptable/interesting/arousing/relevant to the narrative.

I’m sure there are other things and I don’t know it, simply because I haven’t come across them yet or I’ve buried them so deeply I don’t have a clue they’re there!

I’m really enjoying these posts…if you have an #AskMeAnything question, do drop me an email or pop in to Lester Towers to ask.

Introducing Read Around the Rainbow

Read Around the Rainbow, Writers and bloggers of LGBTQIA+ romance

So, here’s our New Thing! My Office Writing Buddies ™, Nell Iris and Ofelia Grand and I all run blogs and we like to drop in to each other’s places and make things collaborative. So we have set up a little group of like-minded people who write similar stories and we are all going to pick a topic once a month and write about it.

I have [please insert your drumroll here] set up a webring. Webrings are an ancient and venerable part of the internet and some of you might not even know what they are. My memories of them from the glorious nineties and noughties are…variable. There weren’t many easy options to find like-minded people on the world wide interweb, so bloggers and website hosts with similar interests got together in groups and directed one-another to our sites. You signed up, stuck a bit of code on your webpage that produced something like this and off you went:

Read around the RainbowVisit the rest of The Rainbow bloggers!

Previous Random Next

(Purely in hopes of admiration, I need to say at this point that I forked a repository on Github to make this happen—I regularly say my coding days are over and they definitely are, I found it tortuous!)

The result of all this is that a handful of us are going to pick a topic, write about it on the last Friday of the month and link to each other’s posts. Because we are all high-stress people, the plan is to be very easy going and not put pressure on ourselves…if we don’t fancy a topic one month, we just don’t do it.

Our first posts will be going up on the Friday 25th of March, so do keep an eye out! We hope to see you around!

Ofelia Gränd/Holly Day :: Nell Iris :: A.L. Lester :: Lillian Francis :: Fiona Glass :: Amy Spector :: K.L. Noone :: Ellie Thomas

Read Around the Rainbow

New year, new stories

pexels-photo-3401897.jpeg
Photo by cottonbro on Pexels.com

I’m not usually the sort of person who celebrates New Year’s Eve and this year it was a bit peculiar anyway, because Mr AL spent it in a hotel near the airport so he could collect Talking Child from her Big American Adventure. I had an early night and woke up to find TC’s flight had landed and they were on their way home. It was the best New Year’s present I could have had, really.

This is the first morning I’ve got up to write in the office for a couple of weeks—I had a horrible cold in the week before Christmas and it knocked me completely off track. I have been having serious problems with the third Bradfield book that my editor and I finally tracked down to the fact I don’t actually like my main character; which is a bit of an issue. I have decided to put it on the backburner for a bit and try and reframe her in my mind whilst I write something else in the interim; but I’m still not sure what.

This year I have in my mind that I am not going to write any series. It’s going to be the year of the stand-alone story. And I want to write something new. I’ve been dealing with monsters and the border and all that for six years now and whilst I love my magical world it’s time to try something different, even if I come back to it in a while. That’s why I wanted to write Bradfield #3 early this year and be able to draw a line under it for a bit.

I want to write the companion novel to The Flowers of Time and expand the mm romance between Edie’s brother Hugh and his friend Carruthers. That involves immersing myself in the 1780s again and is something I’ve been looking forward to for a while. And I have another idea I’m calling Space Gays that I haven’t fleshed out yet…I thought it might be a trilogy though, so that’s a no-no for a while under my current rules!

In my half-started folder I have a post-pandemic dystopia I began well before covid hit. I really want to finish it; but since covid I haven’t been able to even look at it…too close to home. I thought I might try and finish it; but I have serious doubts about anyone wanting to read that sort of thing at the moment. Last week’s newsletter poll more or less confirmed that! And I want to write some more Celtic myths. I’m really enjoying them and people seem to like reading them. They’re very satisfying to write.

In among all these ideas, JMS Books has some interesting submission calls this year; particularly one for time-travel romances. I am now wondering about that…but time. I need a way to fold time.

So. That’s my vague writing plans for the new year. I also have more audiobooks on the backburner—I have a lovely person lined up for The Fog of War and I’d like Callum to voice The Quid Pro Quo for me if he’s available.

I do have a spreadsheet that I’m putting things in to so I don’t overwhelm myself; which is basically what happened toward the end of last year. I tend to fill my coping mechanism up to the top and then when something unexpected happens there’s no room and everything overflows. Leaving myself some headroom is definitely a better strategy.

 Among all that we have been shielding Littlest again against Omicron. She’s had two jabs and hopefully clinically vulnerable children in the UK will be able to have a third soon, which will put my mind at rest.

I wish you all the very best for 2022. Let’s hope it’s a bit less stressful than the last couple of years.

The Week that Was: Mattresses and activism

Cover, The Princess and the Pea

This week, we bought a new mattress. My back’s been increasingly creasing me and we’ve progressed through putting a board under the mattress, adding a memory foam mattress topper and then, finally, adding a big duck-feather thing on top of that. Making the bed is a bit like an out-take from The Princess and the Pea. (Yes, this is a genuine picture of me and Mr AL, in our night attire. Enter our bedroom at your peril.)

The whole process has been massively stressful, largely because it’s such a first world problem. Firstly there’s the cost. And secondly there’s the number of choices. And thirdly there’s my sneaking and increasingly unpleasant feeling that the world is going to hell in a handbasket and I should care more about the fact other people don’t even have safe spaces to lie down rather than the number of poxy springs I can afford to sleep on.

Yes, this is a post about guilt. But it’s also a post about nurturing your spoons. This is a bit of a stupid example–I could simply donate the cost of a mattress to an organisation helping the homeless and stop flailing about on the internet about it. It’s an analogy that I’ve been pondering though…how much is enough? In a society so unequal, how much is enough? Do I have to put up with a bad back to enable other people to have somewhere safe? Or can I make myself comfortable and help others too? It’s a really simplistic analogy, but I guess I’ve needed simplistic this week, because it’s what’s finally straightened my head out.

I’ve been really upset these last few weeks by the cess pit that’s the public discourse over trans rights in the UK. I’m saddened and upset by the level of hatred and silencing directed at trans people and a few weeks ago I decided I’d try and be a bit more active amplifying trans voices, and share things people can do to help. This has involved following accounts that share trans news. And even in this short amount of time, it’s devastated me.

I don’t know how these people manage it. There’s so much bile directed at them. I just pop onto their twitter timelines, check out the day’s events and see if there’s anything practical I can do to help…sign and share something, amplify news about a protest, that sort of stuff. I belong to a couple of blocklists and often the blocked responses scroll down and down and down the page. But then I come across a few people I haven’t blocked and the responses are vile; so I block them too. They are often accounts with followers below a couple of dozen, some only one or two.

After only a few weeks I feel worn away, exhausted by the horribleness of it all. I am non-binary. I present as a short, round, middle-aged straight person, married with children; and as such, my level of privilege is huge. I don’t get spat on in the street, or threatened at school, or shouted at in public bathrooms. Even watching the courage of these people with high public profiles from my safe position behind a keyboard I am awed at their strength. It’s the least I can do to keep trying to amplify their voices.

But…I can’t do it to the exclusion of the rest of my life…the looking after the kids, all the adulting I have to do on the day to day. And that includes the caring for myself. That’s the balance that’s so hard to get. And I guess it loops back to the stupid first-world thing about the mattress…it’s okay to look after myself and it’s okay to not feel guilty about that. As we travel along, our capacity to hold the light for ourselves and for others changes, whatever activism we participate in.

Some days you can’t even hold the light for yourself. Some days you can hold it for the village. It’s really important to a) remember that and not beat yourself up about it…you’re not failing if you can’t do it, you’re doing self-care. And b) you can’t do everything. Even on a good day, you can’t do everything. You’re in it for the long haul and whatever activism you’re doing, that’s enough. One step at a time and hopefully we can change the world.